Saturday, 25 August 2012

The paralympics (an alternative headline story)

The BBC posted an article about the upcoming paralympics. In it, there is a lot of references to how far we have come as a society since those times and how enlightened our attitude towards disabled people are. I want to re write the article using London 2012, because its been bugging me how mis representative it is of disabled peoples day to day life in 2012.
http://www.bbc.co.uk/news/magazine-19366834

The 2012 Paralympic games in London is set against a backdrop of great change for disabled people across the UK. Thanks to the current government the Welfare Reform Act is threatening the income of tens of thousands of disabled people, and combined with the other cuts being implemented  is causing a serious deterioration in their quality of life.

Despite London having one of the best transport systems in the world, over half of it is still inaccessible to those people who use a wheelchair. The tube is partly step free, but even then wheelchair users are unable to alight the train without assistance. London buses, and taxis have ramps (when they work) but are limited to one wheelchair user, and on a bus, if a pushchair is using that space then the person has to wait for the next bus (despite this being illegal).

Despite the paralymic park being completely wheelchair accessible, the hotels around london are far from ideal. Access through the kitchen on a pallet lift is not a 21st century definition of access, but it happened (http://benefitscroungingscum.blogspot.co.uk/2011/06/two-girls-one-wheelchair-21st-century.html). Disabled people do unfortunately have to take it for granted these days, having to book train assistance 24 hours in advance, but it not turning up and being forced to throw themselves off the train to get off. Its not dignified but they get on with it http://www.youtube.com/watch?v=5EYTcFjkLWA.

Despite the modern paralympics being borne out of a doctors assertion that sport was therapy, disabled people live in fear of going to the gym, or any sort of activity. Thanks to the DWP and the daily mail, the seemingly consistent stories of disabled people playing sport (of all things!) and defrauding the government of benefits has been etched into the public conciousness resulting in disabled people not able to enjoy sport. http://www.dailymail.co.uk/news/article-2114356/Waterslide-disability-benefits-cheat-caught-camera-luxury-south-France-holiday-forced-sell-house-pay-thousands.html Despite the fact that it is benefits such as DLA that are actually enabling some of the GB athletes to take part.

Thanks to the hours and hours of TV coverage, and channel4s superhuman style adverts,  peoples attitudes are going to become even more hardened to disabled people on benefits. Crys of "well they can do it, why can't you" will be heard across the country, and the scrounger rhetoric will become entrenched. In the last 3 years attitudes towards disabled people have become a whole lot worse, with hate crime on the rise and discrimination becoming commonplace. This is despite the laws designed to protect disabled people.http://www.scope.org.uk/campaigns/disability-discrimination/disability-hate-crime

Thousands of disabled people would be grateful for any job, as would any able bodied person. However, the jobcentre still attempt to put disabled people who are highly qualified into meaningless training schemes or inapropiate low paid work.

Despite the great sporting event going on, thousands of disabled people are at risk, from cuts and a poor quality of life. Thanks to the implementation of ESA disabled people are committing sucide as they can not cope with the barriers being placed in their way. Behind the games, people are organising protests, doing whatever they can to highlight the plight of disabled people, who after 50 years are still on the margins of society and still struggling to have equality. http://www.dpac.uk.net/2012/08/latest-information-on-atos-games-week/

Thursday, 16 August 2012

you cant be specific without being general.

this post is about the news today concerning right to die, right to live. the story is here.

http://www.bbc.co.uk/news/health-19249680
A man paralysed from the neck down has lost his High Court case to allow doctors to end his life without fear of prosecution.

so a bit of a take care with this blog post because of content warning.

I stumbled into an argument about the news that a paralyzed man isn't allowed to die earlier. I seemed to be in the minority, of one, to think that it was the correct decision. I think, if it gets flipped on its head a bit, the story becomes different.

If within the UK and this society that we live in there is an assumption that paralysis reduces the persons life to such an extent that there is no longer any quality of life, then that is a dangerous and often untrue assumption. One only needs to look at the paralymics to see the counter argument. The quality of a persons life is surely determined by the care they receive and the enabling aspects of that care to be holistic and look after emotional, spiritual as well as physical needs. Again, its social model ideology that I am thinking of, that if a person doesn't have any quality of life, should we be looking at the persons impairment or the ability of the person to engage within society at whatever level they are able to?

I also want to make the point that if we allow this person, or any of the other people who wish to have the right to die, then it sets a dangerous precedent  within law to say that when someone becomes disabled, their quality of life reduces and its ok to think about death for this person (just imagine what the DWP would do with that...) 

Although, the people I was having this debate with couldn't see the link. They seemed to think that this one case should be dealt with in isolation and it wouldnt have any impact on any future law or policy. However, I don't think its possible to be specifc without thinking more generally. Nothing happens in isolation, everything has a consequence, every action an equal and opposite reaction.

In this case, you cant be specific without being general. The general right to life debate applies here, it cant be got away from. The actions from this event has an impact on many thousands of others. It has to be considered in general, as well as being specific.

Thursday, 9 August 2012

..but I can't (or the after effects of the ESA50)

"I'm sorry I can't do that, I'm disabled."

Its a phrase I say all the time and I suspect many disabled people say it. It is an empowering and liberating experience to be able to state your limitations and be able to confidently assert the reasons why. It usually gets the desired effect, either by sheer shock value or being to scared to counteract it.

However, in my life the word cant has been equally disabling. Its as easy to say I can't as I can, and in all honesty its only been in this last 10 months that I have been saying, well maybe I can actually, despite my impairment being disabling. Being able to recognise my limitations has actually been liberating. The daily constant of you can't do this because of your impairment and the way society works slowly got to me and I started to believe it for myself. Its a big cycle, once you get into it, its easy to get other people to do it for you, or just not do it at all. The excuses become easier, and more believable, even realistic. I do it out of protection sometimes, so I wont get hurt.

In the last ten months things changed. I started to take a very slow step out of my comfort zone. I went to a hardest hit protest in Leeds. By myself. On a train. On a saturday. I felt like the character that Jim Carey played in Yes man. He goes to a motivational speaker who encourages everyone to change their lives by saying YES to everything, no matter the consequences. I was saying YES I can for the first time. I survived by taking photos and becoming a bit separate from it all. As a result of that I made a friend who introduced me to student activism, and I learnt the power of I can. I went on to do amazing things, and I am still doing things that I am scared of daily just to make sure I can still say yes, despite everyone and everything saying no. (I always was a bit of a rebel)

However, over the last 3 months since stopping university for the summer that I can't attitude has slipped back into my life, and now it feels like its here to stay again. What has made it become a permanent resident in my vocabulary has been the dreaded ESA50. Although the governments promise to change the system to look at what a person can do, it is inherinately going to be focuing on what a person can't do.

Having to write I can't do this because of this is really hard, because I have started to believe it. Now I am not saying I am lying on my form, because I genuinely can't do all the things I say I can't. However, because I am only writing about what I can't do, it puts it all into sharp focus that I can't. Even the things I can do aren't up to a normal persons standards. Normal people can catch a bus all the way into town without having to get off, but I can't. However, I have to remember that the fact that I am even willing to try is an achievement in itself.

But its hard. That constant nagging of I can't comes back, and then I start to not do things, because I can't and I can't actually tell anymore what I genuinely can't do, and what I am just saying I can't do because I am convincing myself that its beyond my capabilities. It is a really hard balancing act and its one that I was just about managing until my ESA50. To be able to come out of an I can't situation having worked out a way that I can is a real achievement for me, and one that I'm strugglnig with at the moment.

Of course, I can does come with  sacrifices. I went to a training day the other week in manchester. I went with people who know me, so the train wasn't so traumatic (and we had booked seats) but despite saying that I can get to the event, I only lasted until 3pm, and had to get a train home. I spent the next 5 days completely wiped out. But there I am again, using that as a reason not to try it again. As a disabled person things do cost. But, despite only being able to attend 2 thirds of the day I still say it was worth it. I just have to re find the attitude of can do, even in little things and slowly start to build back up to saying I can do, or how can I do to a lot more things.



Tuesday, 7 August 2012

friends plus

I don't have many friends. Thats not a cue to feel sorry for me though, I like it like this. The few good friends I have I know whats what with them, and I'm not forever second guessing if they still like me, I know they do, on the whole. However, recently I have noticed something about these friendships thats a bit weird and wanted to share and see if its a common thing?

I call it friends plus because as a disabled person, people never seem to be 'just' friends. Even its a stupid little thing like buying the drinks, there always seems to be that unwritten rule that being my friend involves a little bit extra. I don't expect it, or even demand it, it just seems to happen like that.

As time goes on and friendships develop and we get to know each other more, then so do the extra things that happen. I know that this happens in most friendships, but it seems different somehow as a disabled person. There are unwritten rules involved as people get to know me, and more importantly my limitations. I don't say that this is disabling, of course not, its enabling, but its just weird that there is some sort of care (in the professional sense) involved in all of my really good friendships. It places an extra expectation and an extra dimension onto the friendship.

Its similar to a loved one, like a family member or partner being expected to care for someone if they can no longer do it themselves, but in a less intense, obvious way. I hope its not, and I don't think it is a negative thing. If you like me you have to look after me a bit sometimes too is to me, like saying I accept all of you all of the time, regardless of what that means. I guess its just the way its done. If a friend expected me to be grateful for whatever it is they do for me then I think it would get tiresome, but with my friends helping me recover from a fit is just the same as sitting and chatting over a coffee. Its just a part of everyday life.

In some ways I am grateful that I am open about being disabled, because at least I know I have good friends and ones I can rely on. They also know they can rely on me, because of that openness. If they need me, they know I will help them out too, it goes both ways, just in a slightly different way sometimes.

It does affect the balance of control in a friendship though. Sometimes my friends are very much in control and being a care giver as oppose to a friend, and at times it is hard to think of yourself as any more than just a burden. But thats when my friends turn around and remind me that its just part of life, and the balance restores itself.

the boundaries are blurred with any friendship, but I really think that with a disabled person it can be more extreme and sometimes difficult to manage, but perhaps thats just me....

Thursday, 2 August 2012

todays big news...the government is listening...

Unless you dont happen to live on planet spartacus you have probably heard this story from Sue and Kaliyas blogs:

http://diaryofabenefitscrounger.blogspot.co.uk/2012/08/guest-post-from-mind.html

http://diaryofabenefitscrounger.blogspot.co.uk/2012/08/breaking-news-possible-new-wca.html

Basically, the DWP are going to work with some pretty big charities to improve the work capability assessment for those like me who are claiming ESA.

Now I haven't sat and looked at the descriptors in great detail, or even thought about how these changes might affect me, because I don't think that these are important at the moment. Until there is a need or a request for help and input the details are subject to change and improvement.

What I think is the most important thing is what this symbolises. This news goes as far as we are going to get to an apology. The DWP are saying these descriptors are not good enough and we need your help. That in itself is amazing. It was only january that spartacus offered the DWP their help in the form of a big document analyzing the new PIP and the welfare reform bill, and it was spectacularly rejected by the DWP, ironically making it more popular. It was only last month that the director of mind quit over not being listened to on this exact subject. http://www.bbc.co.uk/news/uk-politics-17590426 .

I dont know how and I dont know why, but somehow the government are now listening to people about the new Employment and Support allowance and its problems and are making attempts to sort it out. I am cautiously optimistic about this, there is probably some reason behind it that wont be revealed, but at the moment it doesnt feel like it matters. The government is listenning. That has got to be cause for celebration, and a first.

Once the descriptors are scrutinized and hopefully improved we can worry about the application of  medicals and the practical elements of the benefit and how its administered.

Unfortunately ATOS are still there, and seems like they will be in the new PIP too. But if the descriptors are not flawed (or at least less flawed) then ATOS will have a whole lot less to hide behind and will be under alot more scrutiny by Spartacus and the government.

but yes, todays big news... the government is listening....

Tuesday, 31 July 2012

In defence of ATOS

http://www.guardian.co.uk/sport/2012/jul/31/disabled-cuts-paralympic-games-atos?newsfeed=true

Now, before I get sent straight to the naughty step or similar, let me explain why I have found my self in the weird position of defending ATOS.

Last night, as we watched the 2 damming programmes about the work capability assessment, there was one key thing that kept screaming at me. ATOS are not the bad guys, well yes, they are bad and evil and whatnot but as dispatches showed last night they are simply enacting policies set out by governement.

ATOS are not medical experts, but IT experts. The government picked them because of their IT system and their promise of effeciency, and getting people off benefits, which was the governments target. At first it was wrapped up in the cosy ideology of getting disabled people into work, but now it has become more overtly about saving money.

The private companies are profiteering from peoples suffering, but it is the government that is letting them do it. If ATOS wasn't there, there would be hundreds of other companies to take their place, and potentially doing worse things to disabled people, but with more support from the government.

The government dont care who carries out their dirty work, whoevers cheapest and will save them the most money will do. The health professionals dont mind who employs them, they will still get paid. The problem has been and always will be the corrupt policies of Employment and Support Allowance that has ended up with 25% of ESA claimants that had been found fit to work are neither back in employment nor receiving benefits (http://www.guardian.co.uk/commentisfree/2012/jul/31/disabled-people-benefits-panorama?CMP=twt_gu) and if we forget that then we are in danger of misdirecting our anger.

Targeting the paralymics and ATOS as the article at the top suggests is going to happen will, as far as i can see stop people like you and me from being able to access ATOS for our benefit. Now I know this might be a good thing, but any slowdown in my ESA process will only stress me more. I would like my decision ASAP and if I have a medical on the dates of the protests then I will not be impressed at an anti ATOS party being around to 'support' me. It will harm the reputation of ATOS and implicitly link them to the failures of the WCA, which is simply not true, this is government policy, not ATOS policy. If the government has any sense, they will simply turn around and give us what we want, IE. sacking ATOS, but simply replacing them with another private, profiteering company with the same aims and objectives and so the cycle begins again.

Dont you see? ATOS are not the problem here, the law and the whole system is the problem.


links related to #onthesick and #panorama.

hi.. keeping all the links together. first the links to the tv shows (probably only work for a while)

http://www.channel4.com/programmes/dispatches/episode-guide/series-117/episode-1
channel4 dispatches-britain on the sick

http://www.bbc.co.uk/iplayer/episode/b01lldrc/Panorama_Disabled_or_Faking_It/
bbc panorama - disabled or faking it

http://www.channel4.com/programmes/dispatches/articles/britain-on-the-sick-reporter-feature
Britain on the Sick: Reporter Feature

 http://www.guardian.co.uk/society/2012/jul/27/disability-benefit-assessors-film?newsfeed=true
Atos assessors told to keep disability benefit approvals low, film suggests. (firday 27th july)
GP applied for job with Atos assessing whether benefit applicants were fit for work, and secretly filmed his training
 http://www.dailymail.co.uk/news/article-2180833/Off-sick-decade--acne-cough-The-astonishing-cases-885-000-benefit-claimants.html?ito=feeds-newsxml
Off sick for a decade... with acne or a cough! The astonishing cases among 885,000 benefit claimants

 http://www.telegraph.co.uk/health/healthnews/9436969/Disability-tests-sending-sick-and-disabled-back-to-work.html 
Prof Malcolm Harrington, the government appointed adviser on testing welfare claimants, admitted the work fitness test was “patchy”.


 http://www.dailymail.co.uk/debate/article-2181480/Paralympics-just-genuinely-disabled-able-achieve-compared-scroungers.html
The Paralympics will show us just how much disabled people can achieve, and shame despicable benefits cheats


 http://www.dailymail.co.uk/news/article-2180899/Flawed-disability-tests-send-genuinely-sick-unable-work.html?ito=feeds-newsxml
Flawed disability tests 'send those who are genuinely sick and unable back to work'

http://benefitscroungingscum.blogspot.co.uk/2012/07/panorama-disabled-or-faking-it.html  Panorama has revealed evidence of disabled or sick people being cleared as fit to work by the Government’s Work Capability Assessment in spite of medical advice given by their own GPs.

 http://www.guardian.co.uk/tv-and-radio/2012/jul/30/tv-review-panorama-disabled-faking?newsfeed=true  review of disabled or faking it.

http://oxfordstudent.com/2012/07/29/atos-healthcare-still-profiting-from-misery/ Whilst the Olympic opening ceremony, quite fairly, glorified our National Health Service, it is nonetheless worth remembering the real state of affairs for a significant number of Britain’s sick.

 http://www.newstatesman.com/blogs/staggers/2012/07/work-capability-assessments-fightback  Encouraging news out of the High Court on Thursday for opponents of the loathed Atos' work capability assessments (WCAs) : the court granted permission to two disabled people for a judicial review to challenge the operation of WCAs.

  http://blogs.independent.co.uk/2012/07/31/benefits-and-targets-sickness-and-disability-are-not-the-same/ Benefits and targets: Sickness and disability are not the same

 http://www.publicfinance.co.uk/news/2012/07/government-urged-to-end-negative-rhetoric-on-benefit-claimants/ Government urged to end negative rhetoric on benefit claimants

 http://www.4rfv.co.uk/nationalnews.asp?id=148179#.UBftL3D8lKA.twitter  Disabled People Worry About ‘Benefit Scrounger’ Discrimination

 http://www.thebureauinvestigates.com/2012/07/31/tough-love-or-tough-luck-assessing-disability-benefits/ Tough love or tough luck: assessing disability benefits

 http://www.guardian.co.uk/commentisfree/2012/jul/31/disabled-people-benefits-panorama?CMP=twt_gu   Sick and disabled people are being pushed off benefits at any cost
As Panorama showed, the pressure on medical assessors to declare sickness benefits claimants fit for work is immense

 http://www.thesun.co.uk/sol/homepage/news/4463724/Lazy-benefit-cheats-give-people-like-me-a-bad-name.html
 Lazy benefit cheats give people like me a bad name

 http://www.dailymail.co.uk/news/article-2181365/Out--Boss-incapacity-benefit-crackdown-called-humanity.html
Out... Boss of incapacity benefit crackdown who called for more humanity

http://www.bbc.co.uk/news/education-19048294  Benefit cheats 'colour attitudes to disabled people'
 http://www.morningstaronline.co.uk/news/content/view/full/122071 Pressure piles up on sick profiteers Atos

http://www.scope.org.uk/news/blogs/scope-blog/dispatches-wca scopes blog

http://benefitscroungingscum.blogspot.co.uk/2012/07/q-when-is-target-not-target-when-its.html?m=1 when is a target not a target
http://www.mirror.co.uk/news/uk-news/steven-bick-doctor-claims-government-1172457#.UBZceS3hi1Q.twitter 'Driving disabled off benefits': Doctor claims Government has issued targets for 7 out of 8 to be reclassified as eligible for work

  http://www.bbc.co.uk/news/uk-politics-19046447  Reviewer of fitness-to-work benefit tests to stand down

http://allbigideas.blogspot.com/2012/07/on-sick.html my review of on the sick

  http://www.guardian.co.uk/sport/2012/jul/31/disabled-cuts-paralympic-games-atos?newsfeed=true
Disabled anti-cuts campaigners take the fight to the Paralympic Games
Activists to protest against sponsorship of the Games by Atos, the private firm that carries out government fitness-for-work tests

http://www.newint.org/blog/2012/07/31/atos-stories-plays/
Raising the curtain on Atos

 http://www.mirror.co.uk/money/personal-finance/32-disability-benefit-claimants-die-1197304
 A company that tests the sick and disabled for benefits told dozens of people they were fit for work – shortly before they died.

 http://mikesivier.wordpress.com/2012/08/01/disability-benefits-whos-really-faking-it/
Earlier this week, both Channel 4 and the BBC gave us new documentaries about the way disabled people’s claims for state benefits are assessed. On Channel 4, Dispatches offered “Britain on the sick“, while the BBC’s Panorama was entitled “Disabled, or faking it?”. Both are available to watch on the web at the following addresses:

 http://blogs.spectator.co.uk/coffeehouse/2012/07/tough-love-and-fitness-to-work/
 By some quirk of planning, Channel 4 and BBC Two ended up showing two very similar programmes last night about the mess of the assessments that determine whether a sick or disabled person is able to work.