I am leaving the NUS national disabled students committee. I don't want to go quietly and I want to highlight how inaccessible and disabling my experiences have been with attempting to engage with the campaign. This hasn't been a one off, I am the second person to leave the national disabled students campaign committee because of accessibility issues. When such a big organization as the NUS can not get such basic things right for themselves I get worried for our disabled students who they represent. As always, disabled students are at the heart of everything I do and I will continue to fight for equality for all disabled students. We are entitled to an education. Here is my resigination letter. And to keep it positive, here is my video explaining my role as my unions local disabled students representative. Part time with a full time mission :)
http://www.youtube.com/watch?v=e-u7NjhB4MI&feature=youtu.be make some noise, I dont want to go quietly.
I remember the national disabled students conference with a
great deal of delight. It was the first time I felt properly disabled and
properly enabled at the same time. It was a liberating experience, and my
recent election to my local unions disabled student rep position made me
consider being a part of the national committee.
I remember the speeches from the current committee. If you
had the passion and drive to do it, then the small matter of being disabled
wasn’t an issue, it was something to be overcome, not a barrier to
participation. So I signed up, eager to instigate change and make a difference.
Then there was the fiasco with training being inaccessible
which resulted in me not being able to attend and Robyn resigning. I hoped it
was a one off and carried on.
When it came to the first meeting I found there were similar
access issues that I had to battle with in order for me to get there.
Unfortunately, it didn’t appear to just be a one off, but seemed inherent
within the organisation.
When I attended my first training meeting I didn’t feel
enabled, empowered and activated. I felt overwhelmed, disabled and pretty
negative. I didn’t know if this was beyond me, and then the feelings associated
with failing came about which just made it worse. I wasn’t sure if it was me or
it was genuinely beyond my limitations. I spent Friday and Saturday completely
exhausted and unable to function.
What I guess I am saying is that although it might seem
ironic, my experience of the national disabled students committee is that it is
a very disablist position. In order to meet the demands of the job, students
have to have the ability to manage their impairment themselves, and be
confident of themselves in their environment. I am not sure what reasonable
adjustments and access needs I have, and as these change with every day, and
different events it is difficult to pin down exactly what it is that is a
barrier that needs to be overcome. I would need to sit and plan every detail in
great length to know this, and with only being given 2 weeks’ notice of a
meeting this is impossible.
I have spent the weekend not sure what to do, my future with
the committee in question. I didn’t feel supported by the organisation to be
enabled to attend, and I didn’t find the meeting itself particularly
accessible, for me, a physical meeting is not particularly accessible for me in
the first place and with no prior notice of the events I could not have forseen
what barriers would crop up. For example I can’t read out loud, and I need
advance copies of any reading materials as my reading speed is slow, and I like
to be prepared. It might seem natural to mention these things, but for me I
have so many access needs it would be impossible to write them all down just in
case one might be relevant.
And then, this morning, I received a letter from the
government. I have been placed in the support group of ESA for a year. It has
kind of hit me really hard after the initial excitement of getting the benefit
that I am really not well. I leave university in a years time, and I really
want to spend this year concentrating on this brave new experience of not being
at university, and out in the real world. I need to focus on me, the things I
wrote about in the ESA50 form were real, and big things that I need to address
in my life. I need to focus on becoming better, doing my degree and work out
what I am going to do next. Its only recently that life has become harder for
me as I have developed a new impairment that I need to focus on working out
whats going on there etc.
I hope you understand that I don’t want to have to do this.
However, when I am struggling as an impaired person it is difficult to have a
disabled persons identity going alongside. I want to do the best job I can on a
local level as my universities disabled students rep. I feel I can make a real
difference there, and I think I have worked out that it is where my passions
lie. When I am feeling so disabled by my impairment I need to be in enabling
environments that reduce my disability so I am only facing barriers caused by
my impairment (its a bit complicated I know but I am a complicated person and
one who’s studied disability in great detail)
It is with regret that I feel forced to resign from the
national disabled students committee, I hope you understand my reasons for
this.
Thanks
lucia